It was one year ago today when we awoke on a beautiful, sunny Friday morning in our Virginia home. We certainly did not expect to find ourselves sitting in a hospital Emergency Room again, just a few hours later. And we could never predict the fall of Daddy's mental and emotional well-being over the following weeks. Neither did we anticipate the likelihood that he would go an entire year without another major incident.
March 8 was the day of Adrian's last seizure. One year ago today.
That's right, he has gone a full year without a debilitating seizure! For this, we are so very thankful. If you have been following our story, you know this is a thrilling milestone by many accounts. It gives us hope that maybe, just maybe those seizures that came out of nowhere at the end of 2009 and rocked our world, maybe they were only here for a season of our lives.
When I first started this blog last summer, after this March 8 seizure prompted our return to Delaware, we did not feel this hope. Based on the regularity of his seizures over the previous three years, we often thought it was just a matter of time. Every day we would wonder, will it happen today? But in Delaware, we could be comforted with the knowledge that if it did, we would have family at our doorstep in 10 minutes to offer the support we desperately needed.
In truth, we largely credit their support and assistance for Adrian not having another seizure in the last year. We can take our girls to one of our parents' homes when he's having a stressful day or needs a break while I'm at work. But fortunately, he has been able to provide loving care for them without help most of the time.
Now that a year has passed, Adrian is able to drive again. Though this is a huge blessing, we still approach it with caution and wisdom. It gives him the ability to get out and enjoy time alone when I'm off work without having to rely on others for transportation.
We are thankful to reach this milestone, and we appreciate all of your prayers for his healing! For the first couple years with seizures we tried not to make such a big deal about them publicly, so it often feels strange to now broadcast their existence so blatantly. However, I know that as more of you have been made aware, more have prayed. And I have to believe that has made a difference.
But even one year removed, we still feel the implications and impact of these seizures every day. Though they may be silent, their existence is ever present. They have dictated much of our lives and robbed my husband of opportunities in the prime years of his life.
So when we look for the silver lining in all this, we see that the opportunity they have presented him is to spend countless hours with our beautiful, little princesses during the early years of their lives. Those girls are what give him motivation to keep going and keep trying. He does not look to the future much, as what it may hold is a huge mystery. He simply focuses on today. And whether that means doing another load of laundry, changing a dozen dirty diapers or practicing piano, he simply does what is needed to be the best Daddy he can be.
I love him for that. And am so very thankful.
As any stay-at-home parent can understand, he has a great privilege and sometimes even greater challenge before him every morning. Whether our girls remember or acknowledge how much their Daddy has given to them is yet to be seen, but I believe he is giving them the foundation for an incredible future!
Take a look at this video from last night. While I was cooking dinner, Adrian was practicing the song "Let it Go" from Frozen on his keyboard because he knows how much his little girls love it. Adria wanted to join in for a sing-along.
And just in case you missed seeing the movie or don't know this award-winning song, here's the video. It's kind of a big deal...it has 130 million views on YouTube.
Let it Go! Let it Go! Hopefully that can be our motto with the fear of seizures. A year has passed and now the past is in the past.
If you missed our posts about what happened on March 8, 2013 here are the links:
The Last Seizure...IN HIS WORDS
Part 2 - The Last Seizure...IN HIS WORDS
The Angel in the Storm
Coming Home. What a Miracle Looks Like.
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