Our little girls like to question everything. Inquisitive minds want to know. And we aim to use these opportunities to provide clear and truthful answers that educate them, but a few weeks ago Adria really stumped me with one.
She and I were snuggling on the couch one evening soon after we had shared with her the exciting news that there is a baby in Mommy's belly again!
Adria was three years old when her younger sister Johanna was born and even at that age she seemed to clearly grasp the concept that her baby sister was growing inside me. She would love on my belly and talk to the baby all the time.
Here is Johanna helping to send off Adria to school this week:
At six years old now, Adria already wants to hug and kiss the baby in my belly every morning and night even though I'm not yet "Fat Pregnant" as she says :)
So as we sat together that evening, Adria was asking me all types of questions about the baby. She has been pretty consistently convinced that she's having a little brother, though we have no proof of that yet. After a few questions like, "Will he have blue eyes like me and Daddy and Jo-Jo or brown eyes like you?", she casually asks me this....
"Will my baby brother have Spina Bifida like me?"
I pause. Gulp. Of course I have thought of questions like this in the stillness of the night and as we considered having another the child. The risk is clearly higher in our family. But it was not a question I had planned for or been prepared to answer from my sweet little girl who lives a courageous life with spina bifida.
Quick. Think. How do I respond? My immediate thought is...I hope and pray not! But I can't say that to her. I can't let her think for a moment that I don't love and appreciate how her body was made. I love her beyond comprehension. Yet, I would never wish for a child to be born into a life that could be exponentially more complicated than "average," nor would I wish on any parent the struggle of caring for a child with unique needs and differences. Sure, we can be made better, stronger people as we daily walk these journeys, but still...
The best response I could come up with was a question back to my little girl.
"What do you think, honey? Do you want our baby to have spina bifida?"
"Yeah, I think so," Adria says quietly.
I had really hoped that was not her answer. Or did I? Did that answer show that she is comfortable and confident in her life and her body? That she thinks it's no big deal to have spina bifida? Or did it come from a place of loneliness, where she recognizes her differences and does not want to be the only one in her world who must wear leg braces, who has a large scar on her back, and who has to visit the nurse everyday at school instead of using the bathroom like her classmates? Maybe it's a little of both.
Mommy is still stumped by this little girl. I wanted to understand more about what is going on in her heart and mind. So I asked another question.
"Why do you want our baby to have spina bifida?"
"So he can be like my twin!" she says.
Aww, my sweetie. Honestly, I don't remember where the conversation went from there. I think I briefly explained that it's possible but we won't know for a while, and that God is creating this beautiful baby for us to love.
At six years old now, Adria already wants to hug and kiss the baby in my belly every morning and night even though I'm not yet "Fat Pregnant" as she says :)
So as we sat together that evening, Adria was asking me all types of questions about the baby. She has been pretty consistently convinced that she's having a little brother, though we have no proof of that yet. After a few questions like, "Will he have blue eyes like me and Daddy and Jo-Jo or brown eyes like you?", she casually asks me this....
"Will my baby brother have Spina Bifida like me?"
I pause. Gulp. Of course I have thought of questions like this in the stillness of the night and as we considered having another the child. The risk is clearly higher in our family. But it was not a question I had planned for or been prepared to answer from my sweet little girl who lives a courageous life with spina bifida.
Quick. Think. How do I respond? My immediate thought is...I hope and pray not! But I can't say that to her. I can't let her think for a moment that I don't love and appreciate how her body was made. I love her beyond comprehension. Yet, I would never wish for a child to be born into a life that could be exponentially more complicated than "average," nor would I wish on any parent the struggle of caring for a child with unique needs and differences. Sure, we can be made better, stronger people as we daily walk these journeys, but still...
The best response I could come up with was a question back to my little girl.
"What do you think, honey? Do you want our baby to have spina bifida?"
"Yeah, I think so," Adria says quietly.
I had really hoped that was not her answer. Or did I? Did that answer show that she is comfortable and confident in her life and her body? That she thinks it's no big deal to have spina bifida? Or did it come from a place of loneliness, where she recognizes her differences and does not want to be the only one in her world who must wear leg braces, who has a large scar on her back, and who has to visit the nurse everyday at school instead of using the bathroom like her classmates? Maybe it's a little of both.
Mommy is still stumped by this little girl. I wanted to understand more about what is going on in her heart and mind. So I asked another question.
"Why do you want our baby to have spina bifida?"
"So he can be like my twin!" she says.
Aww, my sweetie. Honestly, I don't remember where the conversation went from there. I think I briefly explained that it's possible but we won't know for a while, and that God is creating this beautiful baby for us to love.
She has asked similar questions several times since, even asking her Granny about it. I feel like I'm treading on sensitive ground with my responses. I am afraid to say the wrong thing; I certainly don't want to put the thought in her mind that I do not want another child with spina bifida. She could misunderstand that to mean something different about herself and our love for her.
I know of parents who have two children with spina bifida. They love them deeply, as I would, but it is a very challenging life to balance all the medications, doctor's visits, special equipment, and medical bills. And I know Adria functions much better than many children born with spina bifida. I do not take that for granted!
But as we planned for this pregnancy, I did the best I could to prevent any potential "birth defects," as spina bifida is labeled. Every morning I took four 1MG tablets of Folic Acid, which is at least five times the dose in most pre-natal vitamins. I did this faithfully for the six months prior to conception and even before that made sure to regularly take high doses of Folic Acid. It's the only known way to reduce your risk of having a child with a Nueral Tube Defect, like spina bifida. Though it's not a guarantee, it significantly drops our risk.
Since we already have a child with spina bifida, our risk of having another child with a similar issue is a startling 1 in 15 chance! HOWEVER, if I take the doctor recommended 4MG of Folic Acid for at least 3 months PRIOR to getting pregnant, that risk drops to about 1 in 15,000!!! Those odds are much better.
Keep in mind, this is a significantly higher dosage than the CDC's recommended daily intake of 400mcg of folic acid for women - 1MG is equal to 1,000mcg.
Still, the question remains...
Will my baby have spina bifida?
At this point in my pregnancy, it has already been decided, as the spinal column is formed very early and a defect like spina bifida occurs just 21 days after conception. We cannot know for certain until our baby is born, but generally an ultrasound will detect spina bifida. I do have a Level II ultrasound (with the 3D imaging) scheduled for about one month from now.
We are hoping and praying the only Big News from that day, is whether Adria was right about a Baby Brother!
I know of parents who have two children with spina bifida. They love them deeply, as I would, but it is a very challenging life to balance all the medications, doctor's visits, special equipment, and medical bills. And I know Adria functions much better than many children born with spina bifida. I do not take that for granted!
But as we planned for this pregnancy, I did the best I could to prevent any potential "birth defects," as spina bifida is labeled. Every morning I took four 1MG tablets of Folic Acid, which is at least five times the dose in most pre-natal vitamins. I did this faithfully for the six months prior to conception and even before that made sure to regularly take high doses of Folic Acid. It's the only known way to reduce your risk of having a child with a Nueral Tube Defect, like spina bifida. Though it's not a guarantee, it significantly drops our risk.
Since we already have a child with spina bifida, our risk of having another child with a similar issue is a startling 1 in 15 chance! HOWEVER, if I take the doctor recommended 4MG of Folic Acid for at least 3 months PRIOR to getting pregnant, that risk drops to about 1 in 15,000!!! Those odds are much better.
Keep in mind, this is a significantly higher dosage than the CDC's recommended daily intake of 400mcg of folic acid for women - 1MG is equal to 1,000mcg.
Still, the question remains...
Will my baby have spina bifida?
At this point in my pregnancy, it has already been decided, as the spinal column is formed very early and a defect like spina bifida occurs just 21 days after conception. We cannot know for certain until our baby is born, but generally an ultrasound will detect spina bifida. I do have a Level II ultrasound (with the 3D imaging) scheduled for about one month from now.
We are hoping and praying the only Big News from that day, is whether Adria was right about a Baby Brother!
But whether boy or girl or anything else is discovered, we already love our baby and look forward to all the hours, days, weeks, and years we may be blessed to have together.
October is Spina Bifida Awareness month in the U.S., so as the month draws to a close, I thought it was a good time to share Adria's tough question.
The message here is two-fold.
1. You CAN take action before pregnancy to reduce the likelihood that your child will have Spina Bifida.
2. But if you find out your baby has Spina Bifida, do not despair. You will be amazed by your incredible child as together you embark on a journey to fight for the best life possible. You will cry and feel discouraged at times, but that's expected. The journey is worth it.